Pfizer have agreed to supply Sutent for Ian indefinately. Thanks have to go to all the teams at the Hospital who worked so hard to achieve this. I imagine it's been an administrative nightmare as well as taking up a great deal of the Consultants' time.
As much as I would like to appeal the NHS denial of funding and humiliate the PCT for putting profit before patient care I simply don't have the energy. We'll probably still have to pay for the tests, consultations etc. but £400 is much easier to find than £4000 every 6 weeks.
It is a huge relief and I now need to recuperate and regain my own health and sanity. Its been a massive learning curve and an immense battle.
Many thanks to Kate Spall at The Pamela Northcott Fund for being an invaluable resource and a real inspiration and support in the darkest of times. Also to Rose & Julia at the Kidney Cancer Support Network and all the other "pheo" survivors throughout the world who I have relied so much upon for advice. Friends and family - you know who you are - xx
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