legalities etc

Erm, not sure how to say this but it would appear that we have explored all orthodox medical avenues and they have turned into cul de sacs....

Sutent is obviously not working so perhaps it's time to explore other avenues.... which of course may also turn into cul de sacs....

Would I do this if it was me with phaeochromocytoma?
Would I be googling and exploring, looking for a solution, a prolonging of life?

Somehow I think not....  but it's not me... it's the man I love and I don't want to see him suffer.

So check out Pam's story ( http://lifewithpheo.blogspot.com )  and tell me what you think... Am I grasping at straws ?   Could marijuana lower Ian's hormone levels?

Is medicinal weed available in the US the same as the weed we could buy (illegally) in the UK from someone who grows it in his basement/shed etc...?

There are ways of "smoking" weed without the tobacco - vapourisers for instance - which are easily available, but getting hold of the weed itself is a different matter.  How can I be sure of a quality product with the appropriate levels of THC?  What if it has been sprayed with chemicals or something else?

So many questions, so little time...

The priority now is maintaining hormone levels within acceptable limits.  Adrenaline levels of 40000+ is not acceptable.  My main fear is CVA (a Cerebral Vascular Accident or stroke)  I don't want the man I love to be crippled, reduced to a vegetable, immobile, incontinent and unable to express his needs.  Of course this may happen anyway but it's a Hobson's Choice when you are faced with watching your loved one either deteriorate from cancer, have a heart attack or suffer a major stroke...and medicine can keep you alive for a long time in a debilitated state these days...

I've always had a "living will" and a "death plan" my nearest & dearest are aware of so my life is not prolonged unnecessarily.  I don't want any heroics should I personally suffer a major event but the big lad doesn't have this in writing and legally I could be in big trouble if he became debilitated and chose to end his suffering, despite knowing he really wouldn't want to endure the humiliation and despair severe & prolonged illness can cause...

So, what to do? 

Decisions, decisions, decisions...

Comments welcomed......